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Useful links
For patients
In France
See the site
Psychological help
Aide medico sociale
In Europe
See the site
Download the app
Patient associations
In France
Super MAVs & Autres AVS
L'association française vient d'être crée, pour soutenir les patients atteints d'une Malformation ArtérioVeineuse ou d'une autre Anomalie Vasculaire Superficielle
See the site
AMLA association : Agir Malformation Lymphatique Alliance- Regrouper, informer, militer : Ensemble contre la Malformation
See the site
Association Vanille-Fraise (Association Française Sturge-Weber)
See the site
Ollier Maffucci
See the site
In Belgium
VASCAPA
See the site
In the Netherlands
HEVAS
See the site
CMTC
See the site
For healthcare professionals
In France
Orphanet, le portail des maladies rares et des médicaments orphelins
See the site
- BNDMR, the national database for rare diseases
See the site
- Fava Multi
Ressources
E-learning
National meetings/RCP :
Multidisciplinary Consultation Meetings (RCP) | FAVA-Multi
RCP Preindication of access to genomic diagnosis for Superficial Arteriovenous and CNS Malformations with aggressive potential (as part of the France Genomic Medicine 2025 Plan)
In Europe
- The EJP-RD Virtual Platform
See the site
• VASCERN/VASCA
Webinar
Training and Education
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